JAN '13 - Read Sarah's own account of daily life living with Epidermolysis Bullosa on another website.
Read her original profile on Shannon Daley Memorial Fund's website.
- Hayley was diagnosed with pineoblastoma in February 2011. Pineoblastoma is an extremely rare inoperable brain tumor. Hayley underwent high-dose chemotherapy...
- Taliah had surgery on both feet a year ago. She is not back on her feet walking quite yet, she is still getting therapy. She's a freshman in high school participating in drama club and art club...
- Damien has had a long hard road since the last update. However we have found one more piece to the puzzle. Damien was diagnosed with Pituitary Dwarfism in October. After almost 2 years of trying...
- Thomas is doing great. Living with Spina Bifida is no walk in the park. The secondary conditions associated with this birth defect can be very challenging to monitor and deal with....
- Finn had his
(basically) final surgery this past Monday November 14th. It had
a few minor complications resulting in an overnight stay but otherwise
he is finished with the removal of his birthmark...
- We are so
grateful for the help that we received from the Shannon Daley Memorial
Fund. We can’t believe it’s been two years since we were recipients. In
that two years, Stevie has made good progress...
- Sydney has
continued to amaze her Doctors at Children’s Hospital of Philadelphia.
She no longer needs the ventilator and was decannulated, having the
trach removed permanently in March...
Calahan and Tyler Martin
- Our twin boys,
Calahan and Tyler, were two of the lucky recipients of the 2010 Shannon
Daly Fund. The Shannon Daley Fund has allowed us to purchase much
needed equipment and...
- Jacob has
made wonderful strides since we first became a part of the Shannon
Daley family. Jacob has progressed from using a walker to using his
Service dog Inca or his quad cane to walk...
Joey Delli Santi
- Joey is
continuing to amaze all of us with his recent growth. Thanks to the
help from the Shannon Daley Fund we are able to get Joey the help he
desperately needed with speech and feeding and although he is still
George and Thomas
- We cannot
thank the Shannon Daley Memorial Fund and its generous donors enough
for the help they gave us. Although we eventually lost our home, we
were spared the disruption until after the bulk of the medical crisis
- Erik is now
a senior at Hunterdon Central High School. He will be graduating this
June and has worked very hard to accomplish all of his goals. Erik has
made the honor roll several times this year...
JAN '10 - Andrew has
made tremendous strides since last March. He was accepted to West
Virginia University in April and started college in August...
- Natalie is a
happy camper, enjoying life and spreading happiness to others...
- Since Travis
has been helped by the Shannon Daley Memorial Fund, he has made some